Resources: Deaf/HOH & Blind/Visually Impaired With ASD

• What is the Network?
  A compilation of parents, affected individuals and professionals with special
  interest in people with autism and deafness, or autism and blindness.
• How can I benefit from the Network? 
  We can direct you to support and services available in your local area or community.
• How do I join?
  We are a group supported by ASA (Autism Society of America 1-800-3AUTISM); we urge you to join ASA. You may join our network by filling out the email form or printing it out and mailing it to ARI (Autism Research Institute).
• Who sponsors the Network?
  ASA and ARI—our network is a subcommittee of ASA.
• Are there costs or fees to join?
  No.
• Will my name be used or shared in any way? 
  Only with your permission (indicate your preferences on the registration form).
• Can you help me find employment?
  No, you need to contact local resources (e.g., DD Councils, regional autism employment programs, supported employment programs, etc.).
• How do I get services from special education programs in public schools for transitioning? 
  Federal laws are mandated for transitioning, however, age of transition varies by state. Contact your local agencies/programs.
• How can I get transportation services in my area?
  Contact local agencies/programs.

Research

Blindness and Autism: Parents’ Perspectives on Diagnostic Challenges, Support Needs and Support Provision  
A 2019 study explored parents’ experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children’s development, and ASD. The support was often perceived as fragmented and did not correspond to the families’ needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families.
Read More

ARI published an e-newsletter dedicated to those on the autism spectrum who have hearing and/or visual impairments edited by Drs. Margaret Creedon and Steve Edelson. This e-newsletter gave ARI the opportunity to update the autism community about relevant information related to hearing and/or visual impairments, as well as to provide a forum for discussion. This newsletter is archived here in memory of its editor, Margaret Creedon.

Subscribe to ARI’s eNewsletter for Deaf/HOH & Blind/Visually Impaired