Blindness and Autism: Parents’ Perspectives on Diagnostic Challenges, Support Needs and Support Provision
A 2019 study explored parents’ experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children’s development, and ASD. The support was often perceived as fragmented and did not correspond to the families’ needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families.